Sunday, May 31, 2009
Wednesday, May 27, 2009
One of the main reasons I created this blog was to keep some friends and family more easily in the know. It's a lot simpler for me to just update the blog than rehash the same conversation and facts with each person. Also, sometimes it is difficult and/or awkward bringing this stuff up.
However, I chose to keep the blog public and readily accessible. The paranoid teacher inside me still worries about this. But I do a pretty good job of keeping my disability a secret at work; today a student even told me she thought I was too healthy to need health insurance...riiiiight. Though I do struggle over the blog's privacy settings, I am intrigued to find that there are some new readers to my blog. Who are you? How did you find my blog? Do you have multi focal choroiditis too? Do you know someone who does? Why are you following my weird blog that often has no focus? I would really like to hear from you, so please comment.
In other news, I am beginning to think that my diet might actually be working. On the airplane this past weekend, I nearly shocked myself when I realized that I could see--and see well! The flashes of light were significantly calmer; I even closed my good eye and discovered that I could see much more through my left eye. This news kept me happy for the rest of the flight. Then, I spent the rest of the weekend eating processed flour, chocolate cake, and drinking lots of alcohol. The joke was that I'd return to Philadelphia blind. And what do you know? My flashes of light are indeed a bit more intense than before the trip. Back to being good...but a trip to New York City awaits me this weekend. Being good in New York City? Oxymoron!
Wednesday, May 20, 2009
It's been an eventful year for ol' Rightie here. A post-operation follow-up appointment last week ended in...you guessed it, another Avastin injection. This makes the third injection in 2009, and I haven't even made it to the midpoint.
Am I upset? Actually, not really. I was pumped for last week's appointment and convinced that there would be better news. In a sense, there was; I was able to read more of the eye chart than previously. Doctor wanted to give me another injection because he's confident that I can regain more and more eyesight with increased injections. At first, I was confused because I used to associate these terrible injections with bad news. Turns out, I have had very little exposure to these treatments compared to the typical MFC patient. Some folks have as many as 22 injections in one year! Holy cow! Though neither of us anticipate 22 treatments, we both understand that I will probably have more injections as the months go by.
Indeed, I honestly feel like I am gaining more and more eyesight as the days go by. I have another appointment in June, so I'm quite hopeful. My doctor has also tweaked terminology with the billing department, and I am no longer required to pay for a single lick of these injections!
Thursday, May 7, 2009
I stumbled across a fascinating and enlightening article in the New York Times today. Eating for Eye Health confirms what I hoped my anti-inflammatory diet would do for me all along. Though the article dealt with age-related macular degeneration, its findings are noteworthy and meaningful for those of us with macular degeneration. Period. The article does not mention it by name, but all its food recommendations are perfectly in line with the anti-inflammatory way of eating.
When I began my anti-inflammatory diet, I honestly just sort of took a stab in the dark. Anti-inflammatory diets are not concerned with ocular inflammation. Most folks think of inflammation of the joints...or some other tangible chronic pain. My inflammation is a silent and painless one---when my right eye is duking out all sorts of neovascular and hemorrhaging activity, I honestly don't feel a thing. At best/worst, I might get a headache because the flashes of light become overwhelming. I embarked upon this diet out of hopelessness more than anything else. Whether the diet could help ocular inflammation was a big unknown.
And then the article! It's a small ray of hope for me. Surely, some part of all this must help.
Today, my CSA with Lancaster Farm Fresh began. My box was on the smaller side (typical for the early season) and filled with the makings of salad (lettuce, arugula, cress, radishes, mushrooms, scallions, and rhubarb). I picked up some other goodies at the market, along with some fish because I was motivated by the article; my plan is to make some salad with seared salmon. For dinner tonight I had leftover risotto with carrots and leeks. I added a simple salad of lettuce, grape tomatoes, mushrooms, balsamic vinegar, and a sprinkle of flax seeds. It was a very springtime dinner, which was a nice diversion from all the rain we've been experiencing lately.
...as for the rhubarb. I'm going to try my hand at a rhubarb crisp, of which I will have one bite. Friends will hopefully finish the rest. Perhaps I'll see if I can track down a healthy rhubarb dessert recipe.